Roberto

Hi I am Roberto Marin, partner and lymphoma patient. I wrote to you about my case some time ago, but I would like to refresh a little bit the news. I have to start from the beginning, because if not I can't do it:

Roberto, non-Hodgkin's lymphoma patient

1)     The diagnosis

Rojas-Marcos tells us in his books that we "..can live forty days without Ealing, three days without water, seven minutes without air, but only some seconds withour hope". In my case it has been 3 years since that horrible 13 March 2009 at the Royal Free Hospital in London (I still feel chills rememebering it) and I am as hopeful as ever even though the adversities. That they they diagnosed me an aggressive IV phase T lymphoma. They told it to me in English (of course, I was inLondon) and in a room without windows. It can seem a stupid thing, but I needed to see the day light (or in that case the clouds). But the toughest part was not that. It was to translate, little by little, all the information they were giving me to the person that was holding my hand then: Rocio, my girlfriend, and now my wife. She did not understand anything and she asked me if I was sure I was understanding correctly. I was trying to seem confident, but my voice was cracking. It took me some time (months) to laugh again after the diagnosis. But I did it, and I continue doing it, because life is a present.

Roberto, lymphoma patient, at his wedding

2)     The fight

And then the fight started. We came back to Sevilla to receive chemotherapy, radiotherapy and an auto transplant after several months, which left me in nearly complete remission. There was something strange there. But during all the process, there were some good moments: I got married with Rocio before the transplant, and on her opinion I was the most handsome husband ever, although I did not have any hair. In August 2010, after the transplant, my haematologist told us that the lymphoma had tricked us: it was another type of lymphoma very rare that could only be cured with an allogenic transplant. We would do it when necessary, because it was a very indolent lymphoma (although very ill-feeling). I don't have a compatible donor (although I have a big family) so I have to wait for a donor, a "little brother". When I joke with my friends I tell them that we are looking for my unknown twin, so that they have to become donors. Since then I have been feeling well with some mild treatments and enjoying life, but it seems that the moment is approaching. In the way an important relapse and another one that we are still going through.

3)     The hope

For this time I have been maintaining hope, or at least I recovered it after losing it some times. I continue being HAPPY (in Capitol letters) because, as Punset always says, happiness is in the search, in the verge; happiness is in the waiting room of happiness. ¿And who knows more of waiting rooms than us? I´m making new plans, because I already did the ones that were published in the web. I went to Dublin with Rocio (we travelled all aroundIreland by car, so dangerous!), y took back my job (thanks to my hospital mates and my bosses), and we are soon going to be one more: Yes! Some days ago, after the confirmation of my second relapse, we went to see a sonography and there they were, both of them. Rocío is pregnant with twins (13 weeks), so know I'm really nervous. Here come two new marrow donors. I don't know if they will support Betis or Sevilla, if they will be high or tall, engineers or singers, but I do know they will be marrow donors.

Just now that everything was black, when I had been some seconds without hope...

Roberto lymphoma patient, participating at the Week against Leukaemia 2012

Roberto participating in the Week Agains Leukaemia 2012

Thanks for everything you do, we keep in touch!

A big hug

ROBERTO MARIN

If you want more information about the donation of bone marrow to help people like Roberto (and many other patients) to have the opportunity of a cure, click HERE. Remember that the donation of bone marrow is altruistic, anonymous, and universal. If you register as a bone marrow donor, you could be making a donation to a person from anywhere in the world. If you want more information, write to donants@fcarreras.es or call us on our free phone number (in Spain) 900 32 33 34.

You could also become a member of the José Carreras Foundation. With a little amount you could help us to continue our research.

Webpage updated 12/10/2016 15:32:35